Friday, September 16, 2016

In Everything...

"In everything give thanks."  The distinguishing word here is "in", which should not be confused with the word "for".  There are always blessings in every circumstance that we can find, even if they seem very small, but of course no one needs to be thankful for the bad things they experience, just be thankful for the good you can find in the midst of the bad and difficult.

Some part of me, the part of me that is tired and frustrated and very human, wants to scream and express to the world and anyone who will listen all the things that have not gone the way I wanted.  When I was in nursing school, one of my professor's had a sign on her door and she quoted it often, "Blessed are the flexible for they shall not be bent out of shape."  Flexibility and trust and giving up control.  That's what I'm learning right now.

It is and was great news about Andy's viral encephalitis.  Except that it is of course, viral encephalitis - leaving his body slightly weaker and his immune system not quite up to it's normal fighting level.  That coupled with travel and coming straight from West Africa...and possibly Andy's denial that something else would pop up.  All this created a perfect storm that landed Andy in the hospital on Tuesday.  He has been there and each day is labs show that he is doing better and getting stronger, but it also resulted in longer stay in the USA.  There are many blessings that we found in the middle of this trial, some are super obvious and all were a reminder that God has always been working in the background, preparing and orchestrating everything before we even knew.  One of the biggest praises was the doctor that now has been assigned to Andy is the best one we could have asked for in this specific case.

Andy up walking around early Friday morning
So, Andy is still in the hospital (in Anderson) and should be released today (Friday), if all goes well.  They are waiting for his blood counts to come up.  He is still anxious to come back, and the kids and I are excited to see him.  But, we also want him to wait until he is strong enough to make the trip.  The flight is long and the drive up to Mango when he finally lands in Togo is 8 hours with some very bumpy roads.

And, just in case you're worried - Andy's not contagious at all, but boy, doesn't he like to make life exciting!

In the meantime the kids and I are doing fine.  Nora just started 2nd grade here at the school on the hospital compound.  She has 3 kids in her class, and she's been super excited every morning to go.  This is a huge blessing, too.

We are grateful for all the blessings we can see - both now and as we look back, and we are anxiously awaiting Andy's return home!



Saturday, September 10, 2016

The best of the bad...

Andy's list of possible diagnoses that would have caused all his problems were not happy ones: auto-immune disease (specifically, MS), viral encephalitis, severe reaction to anti-malaria medication causing increased intracranial pressure.  Brain tumor and brain hemorrhage were on the original list but pretty much dismissed after the MRI he had here.  None of these are good options, and after Andy's symptoms continued and occasionally he would experience something new the doctors all agreed that we had reached our diagnostic capabilities here in Togo and more needed to be done.

The waiting is always hard.  Knowing you can't change what will be, but wondering how the answers found will change you.  My heart has been searching God - wondering what He is doing to shake up our life and emotions and wondering what I am learning through all of this...  Praying that I'm am learning more to trust, even through my confusion and questions of how and what and the timing of it all.

Scan and analysis of Andy's eyes
Andy was able to see an opthamologist, and that has been the most helpful.  They were able to take spliced images of his eyes.  It showed inflammation that was likely worse several weeks ago when this began.  He was able to have an MRI done last evening and was able to get the results today - on a Saturday, can you believe it?!?  Everything looked fairly normal, which is what the doctor was expecting after the visit on Wednesday.  What does it all mean?  Well, we have to wait for the "official" diagnosis, but general consensus from the neurologist and opthamologist both seem to conclude it is viral encephalitis.  Essentially, his brain and central nervous system are inflamed because of a viral attack he experienced earlier in July.  As time goes on, his body should recover and the symptoms should continue to dissipate.  Hopefully within a few more weeks (or maybe months) things will be more normal.  (I have my suspicions about what virus caused all this, but we will wait and see if any blood samples can be done to confirm a more specific diagnosis.)

So, this is good news.  So good in fact, Andy has purchased a ticket to return to Togo, and I can hardly wait to see him again.  He leaves Indy on Friday.

I was prepared for much worse news.  Prepared to hear Andy on the other end explaining a very complicated situation, packing up the kids and having to head across the ocean to meet him.  I was ready for all of that, but God answered in a different way.  And my heart is full of gratitude.  The kind where you feel like you don't even deserve something this good and yet it was given to you anyway.

So, who knew being diagnosed with viral encephalitis was good news?  Oh, but it is.  And, God has shown once again that He is good - not because of this outcome, but because He was faithful to sustain me and give me His peace and comfort.  And, then He topped it off with viral encephalitis, and I couldn't be happier.
~amanda

Wednesday, September 7, 2016

The Appointment

Today was the day of the much anticipated appointment.  The one where Andy took my 3 pages of hand-written notes about all the problems and symptoms and the timeline to go along for everything that's happened since July 13th.  The day that everything seemed to go spinning downward and we've not quite found our "normal" since.

Andy made the trip back home and arrived in Anderson late Saturday night.  He seemed to do okay on the trip, but when he landed in Washington, D.C. he noticed that some of his symptoms (vision, and ability to think/process well) were once again popping up.  This time it seems his balance and ability to speak and find words hasn't been as affected, and so everything he's experiencing seems very familiar, but in a milder form.  In some ways, it seems better that he is at least having some of the problems while he is there to be evaluated.

The internet here in Mango has been particularly frustrating while he's been gone.  It suddenly just stopped completely for a few days and has gradually made an appearance again.  Video chats have been nearly impossible, but we've been able to send Facebook messages and e-mails back and forth.  It's been a throw-back to our long-distance, dating days :)

His appointment went well and both Andy and his parents felt that the doctor was thorough and complete in his assessment of the problems.  Because Andy's eye problems have returned (and because our appointment here in Togo with an opthamologist was a little sketch) he has an appointment tomorrow with an opthamologist.  He should also have an MRI this week, hopefully results will be available quickly and we can have a better idea of what our next steps should be.

In the meantime, I've been marking off the days that he's been gone, catching scorpion-like things in my bed (EUGH!), running out of fuel in the gas stove in the middle of cooking, trying to figure out how to pay the electric bill, and having fun discovering that the kids like the anticipation throughout the day of reading parts of "chapter" books together.

Whether he comes here or we go to join him there, I'm looking forward to seeing him again...and eating chocolate!
amanda

Thursday, September 1, 2016

Not the beginning...

but somewhere in the middle.

Andy left today.  In true West African (at least for Togo) style, we woke up to no power and the trusty bus he was taking broke down before it even got to us.  We woke up early with the kids (because they wanted to see him off, wave good-bye like in the movies as he watches through a window).  The bus really is more reliable than other forms of transport around here.  It's the post office bus, after all.  We arrived at the Poste just a few minutes after 7AM, but at 8:45AM I let Andy know that if it still hadn't come, we would leave at 9.  It was just too hot and too much waiting for the kids.  So, at 9AM the kids dragged his one little carry-on bag and his backpack into the post office for him to wait.  We said good-bye and we left.  And, my arms longed to hug him as small little tears fell down my face - but culturally it's just not okay.  So instead I held the baby and we waved good-bye.

I watched Andy have just a little time with each of the kids as we were waiting.  The waiting was hard and messed up our ideal send-off.  But, really, I think it was good.  It was a little bit more time.  One more song to sing with dad, one more joke to tell him, one more book to read with him, and just a few more memories to make before he leaves us.  He texted me around 11:30AM and said the replacement bus just arrived and he was waiting to board...I found out a few minutes later that although he purchased a ticket, he didn't have a seat for the first several hours.  "But it's a good ride", he said.  He is the optimism to my realism, and I'm 100% certain he wasn't being sarcastic but truly believing it was a good ride.

With 45 minutes left to spare on this 1st day of September he let me know he finally made it to the hotel in Lome.  His flight leaves tomorrow night.  And, so it begins - sort of.  More like the story continues to unfold as we wait, pray, watch, and wonder what God is teaching us as we are trusting even when it doesn't make sense.

amanda